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Hannah’s Buddies Charity Classic Another Huge Success
For 14 years, FightSMA’s Tampa Bay chapter, Hannah’s Buddies, and its founders, Duncan and Laurie Elliott, have organized and hosted a remarkable fundraising event for FightSMA. This year’s event,...
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2013 FightSMA Research Conference Wrapup
On April 11 and 12 , FightSMA and Spinal Muscular Atrophy researchers from around the world gathered for this year’s FightSMA Annual Research Conference in Washington, D.C. The conference brought...
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We took many pictures during this year’s FightSMA Research Conference, held in Washington D.C on April 11 and 12. Below is a slideshow featuring some that we selected. For a wrapup of this year’s...
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Why We Do What We Do: The “Purpose” of Our “Party”!
Carice and Andrew Written by Carice Creighton Smith, head of FightSMA Hanover and this month’s Party with a Purpose 2013. Every day, kids with SMA fight a fierce battle just to live. Spinal Muscular...
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Update: Party With A Purpose 2013 a Smashing Success!
An update from FightSMA Hanover’s Carice Smith, coordinator of Party with a Purpose 2013: $37,000…THAT is the astounding amount Party With A Purpose generated for SMA research! Thanks just doesn’t seem...
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The 8th Annual Ride for Corinna’s Angels is July 14!
This Sunday, July 14, the community in Cranston, Rhode Island will gather for the 8th Annual Ride for Corinna’s Angels (FightSMA Rhode Island). Registration begins at 9:30AM and the motorcycles go out...
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Strike Out SMA Bowl-A-Thon 2013
On Saturday, September 21, Corinna’s Angels is holding their Strike Out SMA Bowl-A-Thon at the AMF Cranston Lanes from 1pm-4pm. Teams will be bowling for 1st, 2nd, and 3rd place prizes. Guests will...
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It’s Almost Time Again for Rock’n Out for Isabella
Isabella Rock’n Out for Isabella is almost here again! The third annual fundraiser for SMA research, with all proceeds going to FightSMA, is coming up in just a couple of weeks in Mechanicsville,...
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Dec 30 is Love=Hope Benefit Jam for FightSMA!
The Love=Hope Foundation has announced their 2nd Annual Benefit Jam for Fight SMA! This year it will take place at the beautiful SweetWater Brewing Company in Atlanta, GA, on Dec. 30. Advanced tickets...
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Enjoy BBQ and Support FightSMA
If you know Andrew Creighton from FightSMA Hanover, then you know one of his most favorite foods is BBQ, and not just any ‘ol BBQ, but Buz and Ned’s REAL Barbecue! Over the years, Buz has become a...
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15th Annual Hannah’s Buddies Charity Classic
It is the 15th Anniversary of Hannah’s Buddies Charity Classic! FightSMA’s great friend and fellow fighter, Hannah, hosts her amazing fundraising event to raise money and support for the fight against...
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John Bell and Friends Benefit Bash
This year as part of Hannah’s Buddies 15th Annual Charity Classic the House of Blues Orlando will play host to an amazing line up of singers all to raise funds to support the fight to end Spinal...
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2014 Annual FightSMA Webcast
Save The Date! Friday April 11th is FightSMA’s 2014 annual webcast. A panel of spinal muscular atrophy experts will be discussing this year’s progress in SMA and answering your questions coming in...
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Webcast Viewers, Please Read These Important FAQs
The 2014 Annual FightSMA Webcast will broadcast live at 6:30PM ET on April 11th. Go to www.fightsma.org to watch the webcast live! Here are some important tips to know before the broadcast: Important!...
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9th Annual Ride for Corinna’s Angels
FightSMA is excited for the 9th Annual Ride for Corinna’s Angels event! We are so appreciative of the wonderful Calise Family for throwing this event for the 9th year! The event starts at 9:30AM on...
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